Status:
COMPLETED
Family Health After Predictive Huntington Disease (HD) Testing
Lead Sponsor:
National Institute of Nursing Research (NINR)
Conditions:
Huntington Disease
Eligibility:
All Genders
Brief Summary
The purpose of this study is to identify health management concerns and needs of family members of asymptomatic and symptomatic persons with mutation in the gene for Huntington Disease (HD).
Detailed Description
This is an observational study with three phases. In Phase 1, focus groups consisting of family members of persons with HD Gene mutation will be conducted and data collected to be analyzed through con...
Eligibility Criteria
Inclusion
- Family members of asymptomatic and symptomatic persons with mutation in the gene for Huntington Disease
Exclusion
Key Trial Info
Start Date :
September 1 2001
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
October 1 2008
Estimated Enrollment :
422 Patients enrolled
Trial Details
Trial ID
NCT00075140
Start Date
September 1 2001
End Date
October 1 2008
Last Update
January 16 2009
Active Locations (1)
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1
The University of Iowa College of Nursing
Iowa City, Iowa, United States, 52242