Status:

COMPLETED

Expanded Access of Deferasirox to Patients With Congenital Disorders of Red Blood Cells and Chronic Iron Overload

Lead Sponsor:

Novartis Pharmaceuticals

Conditions:

Thalassemia

Sickle Cell Disease

Eligibility:

All Genders

2+ years

Phase:

PHASE3

Brief Summary

This is an open-label, non-randomized, multi-center trial designed to provide expanded access of deferasirox to patients with congenital disorders of red blood cells and chronic iron overload from blo...

Eligibility Criteria

Inclusion

  • Male or female patients greater than or equal to 2 years of age
  • Documented congenital disorder of red blood cells (e.g., β-thalassemia major, sickle cell anemia, diamond-blackfan anemia) requiring ongoing blood transfusions
  • Cannot be adequately treated with a locally approved iron chelator due to one of the following reasons:
  • Documented non-compliance, defined as having taken less than 50% of the prescribed chelation therapy doses in the 12 months prior to study entry
  • Contraindications, unacceptable toxicities and/or documented poor response to locally approved iron chelators despite proper compliance
  • History of at least 20 blood transfusions (equivalent to 100 mL/kg of packed red blood cells (PRBC\])
  • Serum ferritin value greater than or equal to 1000 µg/L
  • Ability to comply with all study-related procedures, medications, and evaluations

Exclusion

  • Ongoing treatment with another iron chelator (Any other iron chelation therapy must be discontinued at least 24 hours prior to study entry.)
  • Patients who meet the eligibility criteria for any other ongoing Novartis sponsored clinical study protocol with deferasirox and who have geographic access to these sites
  • Patients unable to tolerate (or who have unacceptable toxicities to) prior treatment with deferasirox
  • Serum creatinine above the upper limit of normal at screening.
  • Patients with ALT ≥ 500 U/L at screening.
  • Evidence of chelation-related cataracts or hearing loss within 4 weeks prior to baseline
  • Pregnancy (as indicated by serum β-HCG pregnancy test at screening for all female patients with the potential to become pregnant) and patients who are breastfeeding
  • Patients treated with systemic investigational drug within 4 weeks prior to or with topical investigational drug within 7 days prior to the baseline visit
  • Other protocol-defined inclusion/exclusion criteria may apply.

Key Trial Info

Start Date :

October 1 2005

Trial Type :

INTERVENTIONAL

Allocation :

ACTUAL

End Date :

October 1 2008

Estimated Enrollment :

1683 Patients enrolled

Trial Details

Trial ID

NCT00235391

Start Date

October 1 2005

End Date

October 1 2008

Last Update

June 7 2011

Active Locations (141)

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Page 1 of 36 (141 locations)

1

Arkansas Children's Hospital, UAMS College of Medicine

Little Rock, Arkansas, United States, 72202

2

Alta Bates Comprehensive Cancer Center

Berkeley, California, United States, 94704

3

Children's Hospital of Orange County

Orange, California, United States, 92868

4

Children's Hospital and Health Center of San Diego

San Diego, California, United States, 92123