Status:

COMPLETED

Study of Phenoptin to Increase Phenylalanine Tolerance in Phenylketonuric Children on a Phenylalanine-restricted Diet

Lead Sponsor:

BioMarin Pharmaceutical

Conditions:

Phenylketonurias

Eligibility:

All Genders

4-12 years

Phase:

PHASE3

Brief Summary

The primary objective of this trial is to evaluate the ability of Phenoptin to increase phenylalanine (phe) tolerance in children with phenylketonuria who are following a phe-restricted diet.

Eligibility Criteria

Inclusion

  • Clinical diagnosis of PKU with hyperphenylalaninemia (HPA) documented by at least one blood Phe measurement \>/=360 umol/L (6 mg/dL)
  • Under dietary control with a Phe-restricted diet as evidenced by:· Estimated daily Phe tolerance \</=1000 mg/day
  • At least 6 months of blood Phe control (mean level of \</=480 μmol/L) prior to enrolling in the study
  • Aged 4 to 12 years inclusive at screening
  • A blood Phe level \</=480 μmol/L at screening
  • Female subjects of childbearing potential (as determined by the principal investigator) must have a negative blood or urine pregnancy test at entry (prior to the first dose). Note: All female subjects of childbearing potential and sexually mature male subjects must be advised to use a medically accepted method of contraception throughout the study. Female subjects of childbearing potential must be willing to undergo periodic pregnancy tests during the course of the study
  • Willing and able to comply with all study procedures
  • Willing to provide written assent (if applicable) and written informed consent by a parent or legal guardian after the nature of the study has been explained and prior to any research-related procedures

Exclusion

  • Any condition that, in the view of the PI, renders the subject at high risk from treatment compliance and/or completing the study
  • Prior history of organ transplantation
  • Perceived to be unreliable or unavailable for study participation or have parents or legal guardians who are perceived to be unreliable or unavailable
  • Use of any investigational agent within 30 days prior to screening, or requirement for any investigational agent or vaccine prior to completion of all scheduled study assessments
  • ALT \> 2 times the upper limit of normal (i.e., Grade 1 or higher based on World Health Organization Toxicity Criteria) at screening
  • Concurrent disease or condition that would interfere with study participation or safety (e.g., seizure disorder, oral steroid-dependent asthma or other condition requiring oral or parenteral corticosteroid administration, or insulin-dependent diabetes)

Key Trial Info

Start Date :

February 1 2006

Trial Type :

INTERVENTIONAL

Allocation :

ACTUAL

End Date :

November 1 2006

Estimated Enrollment :

45 Patients enrolled

Trial Details

Trial ID

NCT00272792

Start Date

February 1 2006

End Date

November 1 2006

Last Update

August 13 2015

Active Locations (9)

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Page 1 of 3 (9 locations)

1

Los Angeles, California, United States

2

Oakland, California, United States

3

Sacramento, California, United States

4

San Jose, California, United States