Status:

COMPLETED

Priapism in Boys and Men With Sickle Cell Disease - Demographics, Characteristics and Prevalence

Lead Sponsor:

University of Texas Southwestern Medical Center

Collaborating Sponsors:

National Heart, Lung, and Blood Institute (NHLBI)

Conditions:

Priapism

Anemia, Sickle Cell

Eligibility:

MALE

5+ years

Brief Summary

Priapism, a prolonged erection of the penis, is a medical issue that often affects men with sickle cell disease. The purpose of this study is to collect demographic and clinical information on priapis...

Detailed Description

Priapism is a prolonged, painful erection of the penis that lasts for more than four hours and occurs without sexual stimulation. It occurs when blood in the penis becomes trapped and is unable to dra...

Eligibility Criteria

Inclusion

  • Inclusion Criteria:
  • Diagnosis of sickle cell anemia or sickle beta zero thalassemia, if 5 years of age or over OR
  • Diagnosis of sickle beta plus thalassemia or sickle hemoglobin C disease, if 15 years of age or over
  • Participant and/or parent or guardian must be able to communicate adequately with the interviewer
  • May participate if currently taking hydroxyurea, undergoing chronic transfusion, or participating in other research studies, including those involving treatments such as arginine, if all other inclusion criteria are met
  • Exclusion Criteria
  • Subjects who meet any of the following criteria are disqualified from enrollment in the study:
  • Patient or parent/guardian declines participation.
  • Female.
  • Subject or parent/guardian unable to communicate adequately with the interviewer.

Exclusion

    Key Trial Info

    Start Date :

    August 1 2005

    Trial Type :

    OBSERVATIONAL

    Allocation :

    ACTUAL

    End Date :

    March 1 2008

    Estimated Enrollment :

    1464 Patients enrolled

    Trial Details

    Trial ID

    NCT00300235

    Start Date

    August 1 2005

    End Date

    March 1 2008

    Last Update

    February 1 2019

    Active Locations (27)

    Enter a location and click search to find clinical trials sorted by distance.

    Page 1 of 7 (27 locations)

    1

    University of South Alabama

    Mobile, Alabama, United States, 36688-0002

    2

    University of California, Davis

    Davis, California, United States, 95616

    3

    Children's Hospital and Research Center at Oakland & Summit Medical Center

    Oakland, California, United States, 94609

    4

    Kaiser Permanente, Oakland

    Oakland, California, United States, 94611