Status:
COMPLETED
Positive Exposure: A Photography and Video Intervention for Individuals With Craniofacial Differences
Lead Sponsor:
National Human Genome Research Institute (NHGRI)
Conditions:
Craniofacial Differences
Eligibility:
All Genders
12-20 years
Brief Summary
This study will describe the use of an intervention, developed by an organization called Positive Exposure, to improve self-perceptions among adolescents and young adults who may encounter the stigma,...
Detailed Description
This proposed pilot study aims to describe the use of an intervention, developed by Positive Exposure, for adolescents and young adults who may be challenged by the stigma associated with craniofacial...
Eligibility Criteria
Inclusion
- INCLUSION CRITERIA:
- Participants must be at least 12 years old.
- Participants must have a clinically diagnosed craniofacial condition.
- Participants must be able to speak and write in English. However, if individuals have trouble writing (i.e. dyslexia or dysgraphia), they can tape record their personal reflections, which will be transcribed verbatim for analysis.
- EXCLUSION CRITERIA:
- If the individual is younger than 12 years of age.
- If the individual does not speak English.
- If the individual has been photographed by Rick Guidotti or another professional photographer in the past.
- If the individual has been video-interviewed by Diane McLean.
- If the individual has cognitive impairments that would preclude successfully completing the various steps of the study.
Exclusion
Key Trial Info
Start Date :
June 13 2005
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
January 6 2014
Estimated Enrollment :
44 Patients enrolled
Trial Details
Trial ID
NCT00340964
Start Date
June 13 2005
End Date
January 6 2014
Last Update
December 12 2019
Active Locations (1)
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1
National Human Genome Research Institute (NHGRI), 9000 Rockville Pike
Bethesda, Maryland, United States, 20892