Status:

COMPLETED

Trial to Evaluate the Safety of Lovastatin in Individuals With Neurofibromatosis Type I (NF1)

Lead Sponsor:

University of California, Los Angeles

Conditions:

Neurofibromatosis 1

Eligibility:

All Genders

10-50 years

Phase:

PHASE1

Brief Summary

Neurofibromatosis type I (NF1) is a genetic disorder that affects approximately 1 in 3500 individuals. Half of people with NF1 inherit the condition from a parent, and half have a new occurrence of th...

Eligibility Criteria

Inclusion

  • a diagnosis of NF1 by NIH criteria
  • between 10 and 50 years of age
  • no evidence of a comorbid neurological disorder (e.g., epilepsy, encephalitis)
  • not currently taking a statin medication
  • not suffering from hypercholesterolemia based on self-report, collateral information from physician, or initial medical workup using National Cholesterol Education Program (NCEP, JAMA 2001), guidelines accepted by the American College of Cardiology (ACC) and the American Heart Association (AHA)
  • does not have any of the aforementioned conditions that contraindicates use of statin medications (such as pregnancy, lactation, liver disease, or use of other medication not recommended for use in conjunction with lovastatin). A negative pregnancy test will be required if the patient is a female in reproductive years.
  • not mentally retardation (i.e., IQ greater than 70)
  • no evidence of significant and habitual alcohol or drug abuse or dependence
  • sufficient acculturation and fluency in the English language to avoid invalidating research measures of thought, language, and speech disorder, and verbal abilities.
  • lives in Southern California area (or can arrange \~5 visits to Los Angeles over 14 weeks)

Exclusion

  • comorbid neurological conditions
  • significant drug or alcohol abuse
  • non-fluency in English

Key Trial Info

Start Date :

September 1 2009

Trial Type :

INTERVENTIONAL

Allocation :

ACTUAL

End Date :

March 1 2014

Estimated Enrollment :

44 Patients enrolled

Trial Details

Trial ID

NCT00352599

Start Date

September 1 2009

End Date

March 1 2014

Last Update

November 22 2016

Active Locations (1)

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Page 1 of 1 (1 locations)

1

Semel Institute for Neuroscience and Human Behavior

Los Angeles, California, United States, 90095