Status:

COMPLETED

Pain Management Protocol for Pediatric Sickle Cell Disease

Lead Sponsor:

University of South Carolina

Collaborating Sponsors:

Pfizer

Conditions:

Sickle Cell Disease

Eligibility:

All Genders

8-18 years

Brief Summary

Sickle cell disease (SCD) is a devastating chronic health condition that primarily affects African-Americans. Painful episodes are the most frequent form of morbidity in SCD and the most frequent reas...

Detailed Description

"Home-Based Pain Management Protocol for Children with Sickle Cell Disease" BACKGROUND: Sickle cell disease (SCD) is a devastating chronic health condition that primarily affects African-Americans. P...

Eligibility Criteria

Inclusion

  • Inclusion criteria mandate that the families selected demonstrate adherence with standard SCD treatment as indicated by reliable attendance to clinic visits, and chart notes demonstrating adherence to prescribed medical care (e.g., follow-through with required specialist visits and appointments for diagnostic procedures). Participants must have had at least 1 major pain episode or 3 minor pain episodes in the previous 6 months that resulted in functional impairment, such as reduced school attendance.

Exclusion

  • Individuals with developmental disabilities such as mental retardation, autism, and Down syndrome, severe cognitive limitations following stroke, or diagnoses of severe psychopathology will be excluded from participation as these disorders have the potential to confound the findings.

Key Trial Info

Start Date :

November 1 2006

Trial Type :

OBSERVATIONAL

Allocation :

ACTUAL

End Date :

August 1 2012

Estimated Enrollment :

50 Patients enrolled

Trial Details

Trial ID

NCT00386048

Start Date

November 1 2006

End Date

August 1 2012

Last Update

April 28 2021

Active Locations (1)

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1

Children's Cancer and Blood Disorder

Columbia, South Carolina, United States, 29203