Status:

RECRUITING

Identifying Genetic Causes of IC/BPS

Lead Sponsor:

Boston Children's Hospital

Conditions:

Interstitial Cystitis

Bladder Pain Syndrome

Eligibility:

All Genders

1+ years

Brief Summary

Interstitial cystitis (IC), also called Bladder Pain syndrome (BPS) is a common condition with no known cause or cure. Twin studies and family accounts have suggested that the condition may be genetic...

Detailed Description

The investigators are trying to identify a genetic cause of interstitial cystitis (IC)/bladder pain syndrome (BPS). The investigators are looking to enroll individuals with a clinical diagnosis of IC/...

Eligibility Criteria

Inclusion

  • Diagnosis of IC/BPS
  • Males and females of any age
  • Urinary frequency - more than 1X/hour, and/or
  • Dysuria, and/or
  • Pelvic, suprapubic, or abdominal pain - for 3 months or longer
  • Nocturia
  • Normal urinary stream (by history)
  • No evidence of active bacterial UTI (no pyuria \& negative urinary culture for last 3 months)
  • First degree relative of someone with above symptoms

Exclusion

  • Major structural/anatomical urinary tract abnormalities by ultrasound
  • Underlying inborn conditions affecting the urinary tract
  • Surgery/chemotherapy affected pelvic area
  • GI or GU cancers
  • Severe Constipation in children only

Key Trial Info

Start Date :

January 15 2006

Trial Type :

OBSERVATIONAL

Allocation :

ESTIMATED

End Date :

December 31 2030

Estimated Enrollment :

1000 Patients enrolled

Trial Details

Trial ID

NCT00389142

Start Date

January 15 2006

End Date

December 31 2030

Last Update

December 16 2025

Active Locations (1)

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Page 1 of 1 (1 locations)

1

Boston Children's Hospital (BCH)

Boston, Massachusetts, United States, 02115