Status:
COMPLETED
Chordoma Family Study
Lead Sponsor:
National Cancer Institute (NCI)
Conditions:
Chordoma
Eligibility:
All Genders
4-75 years
Brief Summary
This pilot study, conducted by the National Cancer Institute and the Massachusetts General Hospital, will investigate genetic factors that contribute to the development of chordoma in people from some...
Detailed Description
Chordoma is a rare, slow growing, potentially fatal bone tumor derived from remnants of vestigial or ectopic notochord. It occurs almost exclusively in the axial skeleton (skull base, vertebrae, sacru...
Eligibility Criteria
Inclusion
- INCLUSION/EXCLUSION CRITERIA:
- All English-speaking persons diagnosed with chordoma at age 18 years or less either at MGH or elsewhere, and treated by DRO, MGH between 1988 and the end of the study period (n =100). Ages will range from 5 months - 33 years. There is no age limit fo the self-administered questionnaire or the telephone interview because a parent can complete it on behalf of any case who is less than 18 years, but collection of buccal cells will be limited to cases older than or equal to age 6 years.
Exclusion
Key Trial Info
Start Date :
August 1 2003
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
December 29 2017
Estimated Enrollment :
55 Patients enrolled
Trial Details
Trial ID
NCT00410670
Start Date
August 1 2003
End Date
December 29 2017
Last Update
December 17 2019
Active Locations (1)
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1
Massachusetts General Hospital
Boston, Massachusetts, United States, 02114