Status:

COMPLETED

RAD001 Therapy of Angiomyolipomata in Patients With TS Complex and Sporadic LAM

Lead Sponsor:

Children's Hospital Medical Center, Cincinnati

Collaborating Sponsors:

Novartis Pharmaceuticals

Conditions:

Tuberous Sclerosis

Lymphangioleiomyomatosis

Eligibility:

All Genders

18-65 years

Phase:

PHASE1

PHASE2

Brief Summary

The purpose of this research study is to find out what effects RAD001 has on angiomyolipomas of a person with Tuberous Sclerosis Complex and to determine the safe dose of RAD001 without toxicity. The...

Detailed Description

Tuberous sclerosis complex is a genetic disorder with a birth incidence of approximately one in six thousand. Angiomyolipomas occur in eighty percent of persons with TS, and in up to 60% of persons wi...

Eligibility Criteria

Inclusion

  • Diagnosed with angiomyolipomas and have either Tuberous Sclerosis Complex or lymphangioleiomyomatosis
  • Angiomyolipoma one centimeter or greater in largest diameter
  • Between the ages of 18 and 65 years old.
  • If female, documentation of negative pregnancy test prior to enrollment and, where applicable, use of appropriate non-estrogen containing birth control contraceptive regimen while on study.
  • Adequate renal function (creatinine \< 3 mg/dl)

Exclusion

  • Pregnant or lactating women
  • Continuous requirement for supplemental oxygen
  • Surgery within past 2 months
  • Use of an investigational drug within last 30 days.

Key Trial Info

Start Date :

August 1 2005

Trial Type :

INTERVENTIONAL

Allocation :

ACTUAL

End Date :

July 1 2013

Estimated Enrollment :

36 Patients enrolled

Trial Details

Trial ID

NCT00457964

Start Date

August 1 2005

End Date

July 1 2013

Last Update

September 25 2013

Active Locations (1)

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1

Cincinnati Children's Hospital Medical Center

Cincinnati, Ohio, United States, 45229