Status:
COMPLETED
International SMA Patient Registry
Lead Sponsor:
Indiana University School of Medicine
Collaborating Sponsors:
Cure SMA
Conditions:
Muscular Atrophy, Spinal
Eligibility:
All Genders
Brief Summary
This is a registry of individuals affected by Spinal Muscular Atrophy (SMA) and/or family members of individuals affected by SMA. The purpose of the registry is to allow researchers studying the biolo...
Detailed Description
This project is supported by CureSMA (http://curesma.org/). The Registry functions as a liaison between patients and families interested in participating in research and researchers interested in stu...
Eligibility Criteria
Inclusion
- Inclusion Criteria:
- Individuals or family members of individuals who have been diagnosed with SMA.
Exclusion
Key Trial Info
Start Date :
May 1 1986
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
January 1 2018
Estimated Enrollment :
3000 Patients enrolled
Trial Details
Trial ID
NCT00466349
Start Date
May 1 1986
End Date
January 1 2018
Last Update
August 7 2018
Active Locations (1)
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1
Indiana University School of Medicine
Indianapolis, Indiana, United States, 46202