Status:

COMPLETED

Familial Myeloproliferative Disorders

Lead Sponsor:

Icahn School of Medicine at Mount Sinai

Collaborating Sponsors:

Myeloproliferative Disorders-Research Consortium

National Cancer Institute (NCI)

Conditions:

Polycythemia Vera

Essential Thrombocythemia

Eligibility:

All Genders

7+ years

Brief Summary

Myeloproliferative disorders occur in families, thus giving rise to the theory that it is a genetic disease that may be caused by an abnormal gene in the DNA that can be passed from one generation of ...

Eligibility Criteria

Inclusion

  • Families with 2 or more members diagnosed with polycythemia vera (PV), essential thrombocythemia (ET), PV and ET related myelofibrosis (PV-MF and ET-MF), idiopathic myelofibrosis (IM) or chronic myelogenous leukemia (CML).
  • Healthy family members of subjects diagnosed with a myeloproliferative neoplasm (MPN).
  • Participating subjects must be 7 years of age or older
  • A written assent, parental permission or consent must be obtained prior to any study procedures being performed.

Exclusion

  • Subjects who have a known acquired cause of polycythemia (increased hemoglobin/hematocrit), such as people living in high altitudes (in excess of 14,000 feet), subjects with heart disease, left to right heart shunt, severe hypoxia, cyanotic congenital heart disease, or severe pulmonary disease, will be excluded from this study, secondary forms of thrombocytosis and secondary forms of myelofibrosis.

Key Trial Info

Start Date :

March 1 2008

Trial Type :

OBSERVATIONAL

Allocation :

ACTUAL

End Date :

June 20 2015

Estimated Enrollment :

17 Patients enrolled

Trial Details

Trial ID

NCT00666289

Start Date

March 1 2008

End Date

June 20 2015

Last Update

September 5 2017

Active Locations (6)

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Page 1 of 2 (6 locations)

1

Georgetown University

Washington D.C., District of Columbia, United States, 20057

2

University of Illinois at Chicago

Chicago, Illinois, United States, 60612

3

Mount Sinai School of Medicine

New York, New York, United States, 10029

4

Weill Cornell

New York, New York, United States, 10065