Status:
COMPLETED
Adaptation and Quality of Life Among Adults With Neurofibromatosis Type I
Lead Sponsor:
National Human Genome Research Institute (NHGRI)
Conditions:
Neurofibromatosis Type 1
Von Recklinghausen Disease
Eligibility:
All Genders
18+ years
Brief Summary
This study aims to understand predictors of adaptation and quality of life among adults affected with neurofibromatosis type 1 (NF1) and autosomal dominant neurocutaneous condition. NF1 carries a sign...
Detailed Description
This study aims to understand predictors of adaptation and quality of life among adults affected with neurofibromatosis type 1 (NF1) and autosomal dominant neurocutaneous condition. NF1 carries a sign...
Eligibility Criteria
Inclusion
- INCLUSION CRITERIA:
- Adult men and women at least 18 years of age who self-report as having NF1.
- Participants must be able to read and write in English.
- Individuals of all ethnic, religious, socioeconomic, and educational backgrounds and from a variety of geographic locations in the United States will be included.
- EXCLUSION CRITERIA:
- Children under the age of 18.
- Inability to read and write in English.
Exclusion
Key Trial Info
Start Date :
May 15 2008
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
November 27 2015
Estimated Enrollment :
645 Patients enrolled
Trial Details
Trial ID
NCT00684398
Start Date
May 15 2008
End Date
November 27 2015
Last Update
December 16 2019
Active Locations (1)
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1
National Human Genome Research Institute (NHGRI), 9000 Rockville Pike
Bethesda, Maryland, United States, 20892