Status:
COMPLETED
The Experience of Caregivers of Children With Down Syndrome
Lead Sponsor:
National Human Genome Research Institute (NHGRI)
Conditions:
Down Syndrome
Eligibility:
All Genders
18+ years
Brief Summary
This study will explore how caregivers adjust to having a child with Down syndrome. Primary caregivers 18 years of age and older of a child with Down syndrome may be eligible for this study. Particip...
Detailed Description
The proposed study aims to explore the relationships between perceived uncertainty, hope and adaptation in caregivers of children with Down Syndrome (DS). There are often uncertainties surrounding the...
Eligibility Criteria
Inclusion
- INCLUSION CRITERIA:
- Participants will be men and women ages 18 or older who are the primary caregivers of a child with Down syndrome. The parent may be a biological or adoptive parent or other primary caregiver and the child must reside with the primary caregiver.
- EXCLUSION CRITERIA:
- None
Exclusion
Key Trial Info
Start Date :
May 14 2008
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
February 3 2014
Estimated Enrollment :
546 Patients enrolled
Trial Details
Trial ID
NCT00695695
Start Date
May 14 2008
End Date
February 3 2014
Last Update
December 17 2019
Active Locations (1)
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1
National Human Genome Research Institute (NHGRI), 9000 Rockville Pike
Bethesda, Maryland, United States, 20892