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Status:

RECRUITING

International Pediatric Adrenocortical Tumor Registry

Lead Sponsor:

St. Jude Children's Research Hospital

Conditions:

Adrenocortical Tumor

Eligibility:

All Genders

Up to 21 years

Brief Summary

This study aims to collect demographic and medical information including detailed family history of cancer of children and adolescents with adrenocortical tumors in order to learn more about the clini...

Detailed Description

Adrenocortical tumors (ACT) are rare cancer types that form in the outer layer of the adrenal gland and are very uncommon in children and teenagers. There is variation in pediatric ACT incidence world...

Eligibility Criteria

Inclusion

  • STRATIFICATION ASSIGNMENT:
  • Stratum A: participant suspected or confirmed diagnosis of adrenocortical tumor (ACT)
  • Stratum R: relative of participant with ACT and TP53 mutation who has diagnosis of malignancy
  • Stratum P: biological parent of participant with ACT
  • Inclusion Criteria - Stratum A (participant with ACT):
  • Age ≤ 21 years old at diagnosis
  • Suspected or confirmed diagnosis of adrenocortical tumor (adenoma, carcinoma or undefined histology).
  • Signed informed consent
  • Inclusion Criteria - Stratum R (relative):
  • Any age
  • Diagnosis of malignant tumor
  • Signed informed consent
  • Inclusion Criteria - Stratum P (parent):
  • Biological parent of Stratum A participant

Exclusion

    Key Trial Info

    Start Date :

    October 1 2001

    Trial Type :

    OBSERVATIONAL

    Allocation :

    ESTIMATED

    End Date :

    December 1 2040

    Estimated Enrollment :

    9999 Patients enrolled

    Trial Details

    Trial ID

    NCT00700414

    Start Date

    October 1 2001

    End Date

    December 1 2040

    Last Update

    December 18 2025

    Active Locations (5)

    Enter a location and click search to find clinical trials sorted by distance.

    Page 1 of 2 (5 locations)

    1

    Stanford University

    Stanford, California, United States, 94305

    2

    All Children's Hospital/St. Petersburg Hospital

    St. Petersburg, Florida, United States, 33701

    3

    The Children's Medical Center

    Dayton, Ohio, United States, 45404

    4

    St. Jude Children's Research Hospital

    Memphis, Tennessee, United States, 38105