Status:

RECRUITING

Polycystic Kidney Disease Data Repository

Lead Sponsor:

The Rogosin Institute

Collaborating Sponsors:

Weill Medical College of Cornell University

New York Presbyterian Hospital

Conditions:

Polycystic Kidney Disease

Eligibility:

All Genders

18+ years

Brief Summary

Autosomal dominant polycystic kidney disease (PKD) is the most common inherited kidney disease, affecting more than 400,000 people in the U.S. and 5 million people worldwide. PKD is the 4th most commo...

Detailed Description

Visit #1: * An initial detailed history, physical examination, and laboratory evaluation * An extensive family history of PKD will be obtained from the patient. Follow-up Study Visits: \- Patients ...

Eligibility Criteria

Inclusion

  • Any person, age 18 or older, with previously diagnosed ADPKD is eligible to participate.

Exclusion

  • Inability to provide informed consent.

Key Trial Info

Start Date :

November 1 2002

Trial Type :

OBSERVATIONAL

Allocation :

ESTIMATED

End Date :

December 1 2030

Estimated Enrollment :

1000 Patients enrolled

Trial Details

Trial ID

NCT00792155

Start Date

November 1 2002

End Date

December 1 2030

Last Update

November 12 2025

Active Locations (1)

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1

The Rogosin Institute

New York, New York, United States, 10021