Status:

COMPLETED

Validation of the Sickle Cell Disease Pain Burden Interview

Lead Sponsor:

Connecticut Children's Medical Center

Conditions:

Sickle Cell Disease

Pain

Eligibility:

All Genders

7-21 years

Brief Summary

The purpose of this study is to validate a brief survey tool, the SCD Pain Burden Interview (SCPBI), which can be used in the clinical and/or research settings to assess the impact of pain on children...

Eligibility Criteria

Inclusion

  • Documented sickle cell disease
  • 7 years old or greater
  • Primary caregiver present at the first visit for children \< 18 years of age

Exclusion

  • Primary language spoken other than English
  • Patient is in acute pain episode at time of initial visit

Key Trial Info

Start Date :

December 1 2008

Trial Type :

OBSERVATIONAL

Allocation :

ACTUAL

End Date :

December 1 2012

Estimated Enrollment :

131 Patients enrolled

Trial Details

Trial ID

NCT00804362

Start Date

December 1 2008

End Date

December 1 2012

Last Update

July 30 2013

Active Locations (1)

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Connecticut Children's Medical Center

Hartford, Connecticut, United States, 06106