Status:

UNKNOWN

Botulinumtoxin A Treatment in Epidermolysis Bullosa Simplex and Pachyonychia Congenita

Lead Sponsor:

Uppsala University

Conditions:

Epidermolysis Bullosa Simplex

Eligibility:

All Genders

16+ years

Phase:

PHASE2

Brief Summary

This study evaluates the clinical effect of foot injection of the bacteria protein Botulinum toxin A on plantar pain in patients with EBS (epidermolysis bullosa simplex) or PC (pachyonychia congenita)...

Detailed Description

Epidermolysis bullosa simplex (EBS) is the most common subtype of epidermolysis bullosa and mutations in keratin genes (KRT 5/14) are responsible for this condition. Painful blisters and keratoderma o...

Eligibility Criteria

Inclusion

  • Informed consent received from patient
  • Informed consent received from patient´s parents (when patient \< 18 years)
  • A solid EBS-diagnosis based on genetic analysis and/or phenotype. The EBS-diagnosis will be performed by Professor Anders Vahlquist, Swedish Centre of Genetic skin disorders, Uppsala.
  • Age \> 16 years
  • Patients must be previously untreated with Btx A
  • If female, patient is post-menopausal, surgically sterilized, or willing to use an acceptable method of birth control

Exclusion

  • Contraindication to Btx A
  • Contraindication to general anaesthesia
  • Use of aminoglycosides, tetracyclines , spectinomycin, lincomycin, polymyxin or muscle relaxants
  • Pregnancy or lactation
  • Patients unwilling to meet the requirements of the protocol
  • Other medical or social reasons for exclusion at the discretion of the Investigator

Key Trial Info

Start Date :

May 1 2009

Trial Type :

INTERVENTIONAL

Allocation :

ESTIMATED

End Date :

December 1 2012

Estimated Enrollment :

40 Patients enrolled

Trial Details

Trial ID

NCT00936533

Start Date

May 1 2009

End Date

December 1 2012

Last Update

March 9 2011

Active Locations (1)

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1

Svettmottagningen, Sofiahemmet

Stockholm, Sweden, SE - 114 86