Status:
COMPLETED
Decision Making in Serious Pediatric Illness
Lead Sponsor:
Children's Hospital of Philadelphia
Collaborating Sponsors:
National Institute of Nursing Research (NINR)
Conditions:
Parental Decision Making for Seriously Ill Children
Eligibility:
All Genders
18+ years
Brief Summary
This study will look at a cohort of parents whose children are confronting life-threatening illnesses in intensive care, palliative care, and complex care settings, to test whether parents with higher...
Detailed Description
Parents making medical decisions for a child living with a life-threatening condition confront, sometimes repeatedly, an extremely daunting task: how to decide when to set aside the therapeutic goal o...
Eligibility Criteria
Inclusion
- Parents of children who are patients at The Children's Hospital of Philadelphia (CHOP) admitted to the neonatal, pediatric, or cardiac intensive care unit (NICU, PICU, or CICU), or who have been referred to the Pediatric Advanced Care Team (PACT) for palliative care services. A patient is eligible when the patient's attending physician considers it likely that parents will have major treatment decisions to make for their child within the coming 12 to 24 months.
Exclusion
- Non English-speaking parents
Key Trial Info
Start Date :
July 1 2010
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
June 1 2017
Estimated Enrollment :
358 Patients enrolled
Trial Details
Trial ID
NCT01163136
Start Date
July 1 2010
End Date
June 1 2017
Last Update
October 3 2017
Active Locations (1)
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1
The Children's Hospital of Philadelphia
Philadelphia, Pennsylvania, United States, 19104