Status:
COMPLETED
Neurofibromatosis Type 1 Patient Registry
Lead Sponsor:
Washington University School of Medicine
Conditions:
Neurofibromatosis Type 1
Eligibility:
All Genders
Brief Summary
The Neurofibromatosis Type 1 (NF1) Patient Registry Initiative (NPRI) is a web-based registry that asks participants to fill out a 30-minute online questionnaire to collect information about the spect...
Eligibility Criteria
Inclusion
- Individuals diagnosed by a healthcare provider with Neurofibromatosis Type 1
Exclusion
- Individuals without a healthcare provider diagnosis of Neurofibromatosis Type 1
Key Trial Info
Start Date :
May 1 2011
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
July 1 2017
Estimated Enrollment :
2391 Patients enrolled
Trial Details
Trial ID
NCT01410006
Start Date
May 1 2011
End Date
July 1 2017
Last Update
July 25 2017
Active Locations (1)
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1
Washington University
St Louis, Missouri, United States, 63130