Status:

COMPLETED

Brain Perfusion in Pantothenate Kinase-associated Neurodegeneration (PKAN)

Lead Sponsor:

Susan J. Hayflick

Collaborating Sponsors:

Oregon Health and Science University

Oregon Clinical and Translational Research Institute

Conditions:

Pantothenate Kinase-associated Neurodegeneration (PKAN)

Eligibility:

All Genders

7-75 years

Brief Summary

The purpose of this study is to learn whether blood flow in the brain is normal in people with pantothenate kinase-associated neurodegeneration (PKAN). Specifically, preliminary data suggest a region ...

Eligibility Criteria

Inclusion

  • diagnosis of PKAN confirmed by MRI and gene testing
  • able to undergo MRI for approximately 1 hour without sedation

Exclusion

  • deep brain stimulators or other conditions that warrant avoidance of a strong magnetic field
  • previous reaction to gadolinium (Gd) contrast agent
  • acute or chronic kidney dysfunction
  • pregnant and/or nursing at time of study

Key Trial Info

Start Date :

April 1 2013

Trial Type :

OBSERVATIONAL

Allocation :

ACTUAL

End Date :

January 1 2018

Estimated Enrollment :

10 Patients enrolled

Trial Details

Trial ID

NCT01838018

Start Date

April 1 2013

End Date

January 1 2018

Last Update

May 29 2018

Active Locations (1)

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Oregon Health & Science University

Portland, Oregon, United States, 97239