Status:
RECRUITING
Clinical and Neuropsychological Investigations in Batten Disease
Lead Sponsor:
University of Rochester
Conditions:
Neuronal Ceroid Lipofuscinosis
Neuronal Ceroid Lipofuscinosis CLN1
Eligibility:
All Genders
Brief Summary
This study aims to assess the natural history of Batten disease (Neuronal Ceroid Lipofuscinosis) by obtaining information about the motor, behavioral, and functional capabilities of individuals with B...
Detailed Description
Batten Disease is an inherited disorder that causes progressive cognitive and behavioral decline in children. There have been no systematic clinical studies of Batten Disease using standardized rating...
Eligibility Criteria
Inclusion
- child or adult with any form of Batten disease
- parent or legal guardian of a child or adult with any form of Batten disease
Exclusion
- \- parent or guardian unable or unwilling to provide permission for the affected individual
Key Trial Info
Start Date :
August 1 2004
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
August 1 2035
Estimated Enrollment :
500 Patients enrolled
Trial Details
Trial ID
NCT01873924
Start Date
August 1 2004
End Date
August 1 2035
Last Update
September 12 2025
Active Locations (1)
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1
University of Rochester
Rochester, New York, United States, 14642