Status:
COMPLETED
The Role of Uncertainty in Coping: The Experience of Parents of Children With Undiagnosed Medical Conditions
Lead Sponsor:
National Human Genome Research Institute (NHGRI)
Collaborating Sponsors:
University of Virginia
Conditions:
Undiagnosed Disease
Eligibility:
All Genders
18-115 years
Brief Summary
Background: \- Parents of a child with an undiagnosed medical condition face a lot of uncertainty. They may not know how to take care of their child or how the illness will affect their family life. ...
Detailed Description
The proposed study aims to test the effect of the degree of perceived uncertainty on coping efficacy among parents of children with undiagnosed medical conditions. There are many dimensions to uncerta...
Eligibility Criteria
Inclusion
- Participants for this study will be English speaking men and women ages 18 years or older who have a child with an undiagnosed medical condition who have applied to the Undiagnosed Diseases Network, and have been assigned to the NIH.
- The participant may be the adoptive or biological parent.
- Parents may decide between themselves who will complete the survey as only one survey per household will be allowed.
Exclusion
Key Trial Info
Start Date :
June 12 2013
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
Estimated Enrollment :
168 Patients enrolled
Trial Details
Trial ID
NCT01905865
Start Date
June 12 2013
Last Update
January 8 2026
Active Locations (1)
Enter a location and click search to find clinical trials sorted by distance.
1
National Human Genome Research Institute (NHGRI), 9000 Rockville Pike
Bethesda, Maryland, United States, 20892