Status:
COMPLETED
Health Needs of Patients With Kallmann Syndrome
Lead Sponsor:
Centre Hospitalier Universitaire Vaudois
Collaborating Sponsors:
University of Lausanne
Conditions:
Kallmann Syndrome
Congenital Hypogonadotropic Hypogonadism
Eligibility:
All Genders
18-75 years
Brief Summary
Kallmann syndrome (KS), also known as congenital hypogonadotropic hypogonadism (CHH), is a rare endocrine disorder that is characterized by failure to undergo puberty combined with infertility. KS/CHH...
Detailed Description
This study aims to examine the experiences of patients diagnosed with Kallmann syndrome (KS)/congenital hypogonadotropic hypogonadism (CHH). The study includes two parts: * online survey (less than ...
Eligibility Criteria
Inclusion
- Diagnosed with congenital hypogonadotropic hypogonadism: i.e. Kallmann syndrome or idiopathic hypogonadotropic hypogonadism
- Primary language is English/capable of responding to a written questionnaire in English
- Consenting to participate in the study
Exclusion
- other diagnosis of hypogonadism: i.e. hypergonadotropic hypogonadism (Klinefelter syndrome), adult onset hypogonadism, etc.
Key Trial Info
Start Date :
July 1 2013
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
September 27 2017
Estimated Enrollment :
249 Patients enrolled
Trial Details
Trial ID
NCT01914172
Start Date
July 1 2013
End Date
September 27 2017
Last Update
September 29 2017
Active Locations (1)
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1
Centre Hospitalier Universitaire Vaudois (CHUV)
Lausanne, Canton of Vaud, Switzerland, 1011