Status:
COMPLETED
Assessment of the Educational Experiences for Patients Newly Diagnosed With Nephrotic Syndrome
Lead Sponsor:
University of South Florida
Collaborating Sponsors:
Maine Medical Partners
C.S. Mott Children's Hospital
Conditions:
Nephrotic Syndrome
Eligibility:
All Genders
18+ years
Brief Summary
The purpose of this study is to learn about patient, caregiver and healthcare worker perspectives on educating patients with newly-diagnosed Nephrotic Syndrome. All patients enrolled in the Contact Re...
Detailed Description
The survey included questions addressing the following areas: 1.) Information that is important to know when learning to manage Nephrotic Syndrome. 2.) Preferred resources for the education of patient...
Eligibility Criteria
Inclusion
- Patient and Patient Caregiver:
- 18 years or older
- English literate
- History of Nephrotic Syndrome \> 3 months or caregiver of a child diagnosed with Nephrotic Syndrome \> 3 months prior to enrollment
- Informed Consent
- Healthcare Worker
- Age \> 18 years
- English literate
- Provides medical care for children or adults with Nephrotic Syndrome
- Informed Consent
Exclusion
- Inability to provide informed consent and complete survey
- Other criteria as specified by Consortium and based on the data we collect in the Contact Registry
Key Trial Info
Start Date :
January 1 2013
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
May 1 2014
Estimated Enrollment :
186 Patients enrolled
Trial Details
Trial ID
NCT02190955
Start Date
January 1 2013
End Date
May 1 2014
Last Update
July 15 2014
Active Locations (1)
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1
University of South Florida Data Management and Coordinating Center
Tampa, Florida, United States, 33612