Status:

COMPLETED

Enhancing Use of Hydroxyurea In Sickle Cell Disease Using Patient Navigators

Lead Sponsor:

Virginia Commonwealth University

Collaborating Sponsors:

Eastern Virginia Medical School

Children's Hospital of The King's Daughters

Conditions:

Sickle Cell Disease

Eligibility:

All Genders

15+ years

Phase:

NA

Brief Summary

Multi-phase, patient navigator-based program in the Richmond and Tidewater regions of Virginia to demonstrate: 1. the feasibility of using patient navigators to improve the percentage of children and...

Detailed Description

The state of Virginia, including the Virginia Department of Health and three academic medical centers and one federally qualified health center, plans a two-phase demonstration, first of improvement i...

Eligibility Criteria

Inclusion

  • PHASE I:
  • Patient Self Report of Sickle Cell Disease (Genotypes: Hb SS, SC, SBoThal, SB+Thal)
  • 15 years or older
  • Virginia resident

Exclusion

  • Visited one of a pre-selected list of sickle cell specialists in Virginia within the last 6 months
  • PHASE II:
  • Inclusion Criteria:
  • Sickle Cell Disease (SCD) patient (Genotypes: SS or SBoThal)
  • Eligible for Hydroxyurea (according to NIH guidelines)
  • 15 years or older
  • Virginia resident

Key Trial Info

Start Date :

October 1 2012

Trial Type :

INTERVENTIONAL

Allocation :

ACTUAL

End Date :

December 31 2018

Estimated Enrollment :

353 Patients enrolled

Trial Details

Trial ID

NCT02197845

Start Date

October 1 2012

End Date

December 31 2018

Last Update

June 2 2023

Active Locations (1)

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Virginia Commonwealth University

Richmond, Virginia, United States, 23298