Status:
COMPLETED
Patient-Provider Tools to Improve the Transition to Adult Care in Sickle Cell Disease
Lead Sponsor:
Children's Hospital Medical Center, Cincinnati
Conditions:
Sickle Cell Disease
Eligibility:
All Genders
13-24 years
Phase:
NA
Brief Summary
The purpose of the study is to develop patient-provider clinical support tools to improve clinical practice, patient self-management, and disease outcomes in sickle cell disease during transition to a...
Detailed Description
The purpose of the study is to develop patient-provider clinical support tools to improve clinical practice, patient self-management, and disease outcomes in sickle cell disease during transition to a...
Eligibility Criteria
Inclusion
- Have sickle cell disease (SCD)
- Between the ages of 13 and 24
- Receive care at Cincinnati Children's Hospital Medical Center, University Hospital, University of Cincinnati Med Peds Practice, a practice in the Ohio Valley SCD Network, or another local provider
- Parent/caregiver of a patient with SCD age 13-24 years
Exclusion
- Below age 13
- Have significant health complication(s) that would interfere with completion of the intervention (by physician report)
- Have significant cognitive or developmental disabilities (by parent or physician report) due to high demand on participants to understand questions
- Are not a patient at Cincinnati Children's Hospital Medical Center, University Hospital, University of Cincinnati Med Peds Practice, a practice in the Ohio Valley SCD Network, or another local provider
- Are not a parent/caregiver of a patient with SCD age 13-24 years
Key Trial Info
Start Date :
June 1 2011
Trial Type :
INTERVENTIONAL
Allocation :
ACTUAL
End Date :
August 1 2015
Estimated Enrollment :
78 Patients enrolled
Trial Details
Trial ID
NCT02200510
Start Date
June 1 2011
End Date
August 1 2015
Last Update
June 15 2018
Active Locations (1)
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1
Cincinnati Children's Hospital Medical Center
Cincinnati, Ohio, United States, 45229