Status:

COMPLETED

Micro RNAs as a Marker of Aortic Aneurysm in Hereditary Aortopathy Syndromes

Lead Sponsor:

University of Colorado, Denver

Conditions:

Marfan Syndrome

Loeys-Dietz Syndrome

Eligibility:

All Genders

30-60 years

Brief Summary

The primary objective of this study is to determine whether specific patterns of circulating micro-ribonucleic acids (miRNAs) are associated with aortic aneurysm and dissection in patients with heredi...

Eligibility Criteria

Inclusion

  • To be in the study, the participant must meet the following criteria
  • Diagnosis of hereditary aortopathy based upon:
  • Confirmation of a disease causing mutation in a known aortopathy disorder OR
  • Confirmation of disease based on published clinical criteria
  • Participants is male or female and greater than 30 days old
  • Participants are able to undergo standard of care cardiac monitoring including an echocardiogram
  • Willing and able to provide written informed consent by parent(s) or guardian(s) after the nature of the study has been explained and prior to any research related procedures
  • Signed HIPPA compliant research authorization

Exclusion

  • Participant will be excluded from the study for any of the following criteria
  • Diagnosis of a hereditary aortopathy can not be confirmed
  • Existence of an additional comorbid condition- including a co-existing genetic syndrome, heart failure, renal disease, rheumatologic disease, history of malignancy, thyroid disease, recent stroke, other life-limiting illness not related to cardiovascular disease.
  • Extreme prematurity, \<28 weeks gestational age

Key Trial Info

Start Date :

July 1 2014

Trial Type :

OBSERVATIONAL

Allocation :

ACTUAL

End Date :

July 1 2016

Estimated Enrollment :

20 Patients enrolled

Trial Details

Trial ID

NCT02213484

Start Date

July 1 2014

End Date

July 1 2016

Last Update

March 15 2017

Active Locations (2)

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Page 1 of 1 (2 locations)

1

Children's Hospital Colorado

Aurora, Colorado, United States, 80045

2

University of Colorado Hospital

Aurora, Colorado, United States, 80045