Status:
TERMINATED
Behavioural Problems in Huntington Disease : Analysis and Enhancement of Caregiver and Patient Experience
Lead Sponsor:
University Hospital, Angers
Conditions:
Huntington Disease
Eligibility:
All Genders
18+ years
Phase:
NA
Brief Summary
The study hypothesis is that caregivers experience allows them to develop a lot of knowledge and know-how about behavioural problems in Huntington Disease and its consequences. The purpose of this stu...
Eligibility Criteria
Inclusion
- For patients:
- Patients with Huntington Disease declared
- Huntington Disease diagnosed with abnormal number of CAG repeats: 38 \< nucleotide expansion (CAG)
- Total Functional Capacity ≥ 7
- Patients living with a caregiver
- Aged 18 years and above
- Subject gave its written consent
- For caregivers :
- No risk of caregiver having Huntington disease
- Aged 18 years and above
- Subject gave its written consent
Exclusion
- For patients:
- Patient who do not live with a caregiver
- No national health insurance affiliation
- Being under guardianship
- For caregivers :
- Caregiver at risk for Huntington Disease
- No national health insurance affiliation
- Being under guardianship
Key Trial Info
Start Date :
June 1 2014
Trial Type :
INTERVENTIONAL
Allocation :
ACTUAL
End Date :
December 1 2015
Estimated Enrollment :
12 Patients enrolled
Trial Details
Trial ID
NCT02218567
Start Date
June 1 2014
End Date
December 1 2015
Last Update
October 22 2020
Active Locations (1)
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1
University Hospital of Angers
Angers, Maine Et Loire, France, 49933