Status:
RECRUITING
Swiss National Registry of Grown up Congenital Heart Disease Patients
Lead Sponsor:
University Hospital, Basel, Switzerland
Conditions:
Congenital Heart Disease
Congenital Heart Defect
Eligibility:
All Genders
18+ years
Brief Summary
Due to successes in the last decades in pediatric heart surgery and cardiology, 90-95% of the children with congenital heart disease reach adult age.This results in an increasing number of adults or "...
Detailed Description
The SWISS GUCH registry will capture epidemiologic data, diagnosis, type of earlier treatment / intervention and cardiac complications. Following each visit, the cardiac complications will be captured...
Eligibility Criteria
Inclusion
- Adult (above 18 years of age) with congenital heart disease, treated in one of the Swiss centre with specialized organisation for GUCH patients.
- Signed informed consent. Patients with trisomy 21: the parents or legal guardian will have to give the consent.
Exclusion
- None
Key Trial Info
Start Date :
September 1 2013
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
December 1 2033
Estimated Enrollment :
5000 Patients enrolled
Trial Details
Trial ID
NCT02258724
Start Date
September 1 2013
End Date
December 1 2033
Last Update
April 10 2025
Active Locations (6)
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1
Basel University Hospital
Basel, Switzerland, 4031
2
Bern University Hospital Inselspital
Bern, Switzerland, 3010
3
Hôpitaux Universitaires de Genève HUG
Geneva, Switzerland, 1205
4
Centre Hospitalier Universitaire Vaudois CHUV
Lausanne, Switzerland, 1011