Status:

COMPLETED

Safety and Dose Ranging Study of Insulin Receptor MoAb-IDS Fusion Protein in Patients With Hunter Syndrome

Lead Sponsor:

ArmaGen, Inc

Conditions:

Mucopolysaccharidosis II

Eligibility:

MALE

18+ years

Phase:

PHASE1

Brief Summary

AGT-182 is a fusion protein containing idursulfase that is intended to deliver the enzyme peripherally and to the brain, when administered intravenously. This study is a safety and dose ranging study ...

Detailed Description

This is a sequential, open-label, dose escalation, multi-dose study in adults with Hunter syndrome. Two dose levels, assuming tolerability, are planned sequentially, with safety data from the previous...

Eligibility Criteria

Inclusion

  • Male age 18 years or older
  • Diagnosis of Hunter Syndrome (documented fibroblast or leukocyte IDS enzyme activity level of less than 10% of the lower limit of the normal range of the measuring laboratory - or any level of enzyme deficiency together with the presence of a pathogenic mutation in the IDS gene - and documentation of normal enzymatic activity of at least 1 other sulfatase.)
  • Must fall into one of the following groups:
  • currently receiving standard enzyme replacement therapy (ERT) and be willing to discontinue it for the study duration, taking AGT-182 instead
  • have not received standard ERT for at least 3 months and have elevated uGAGs of at least 3.5 fold above age-related normals at study screening
  • have never received ERT
  • Voluntary written consent
  • Sexually mature males must be advised to use a medically accepted method of contraception throughout the study.

Exclusion

  • Refusal to complete screening/baseline evaluations
  • Receipt of an investigational drug within the prior 90 days
  • Any medical condition or other circumstances that may significantly interfere with study compliance
  • Clinically significant spinal cord compression, evidence of cervical instability
  • Known hypersensitivity to idursulfase or any of the components of AGT-182
  • Known to be nonresponsive to standard ERT treatment (i.e., high uGAG values despite taking full dose standard ERT)
  • History of diabetes mellitus or hypoglycemia
  • Contraindication to lumbar puncture, if the patient agrees to this optional assessment

Key Trial Info

Start Date :

April 1 2015

Trial Type :

INTERVENTIONAL

Allocation :

ACTUAL

End Date :

March 27 2017

Estimated Enrollment :

6 Patients enrolled

Trial Details

Trial ID

NCT02262338

Start Date

April 1 2015

End Date

March 27 2017

Last Update

September 18 2018

Active Locations (5)

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Page 1 of 2 (5 locations)

1

Children's Hospital Oakland

Oakland, California, United States, 94609

2

Children's Hospital of Orange County

Orange, California, United States, 92868

3

Emory University

Decatur, Georgia, United States, 30033

4

ZKJM MC University of Mainz

Mainz, Germany