Status:

TERMINATED

Treatment of Refractory Hemochromatosis Rheumatism by Anakinra: a Preliminary Phase II Study

Lead Sponsor:

Rennes University Hospital

Conditions:

Refractory Hemochromatosis Rheumatism

Eligibility:

All Genders

18+ years

Phase:

PHASE2

Brief Summary

Treatment of refractory hemochromatosis rheumatism by Anakinra. Prospective, multicenter, non-randomised, single-arm, open-label, phase II trial.

Detailed Description

Hereditary hemochromatosis (HH) is a genetic disease characterized by tissue iron overload. The most common genotype is homozygosity for the p.Cys282Tyr mutation of the HFE gene (MIM 235200). It is a ...

Eligibility Criteria

Inclusion

  • Patients with age equal to or over 18 years old,
  • Patients with proved hereditary hemochromatosis with homozygosity for the C282Y mutation of the HFE gene,
  • Patients with rheumatism related to hemochromatosis, considered by the rheumatologist refractory to usual treatment defined by a persistent painful symptomatology despite a treatment of at least one month with level 2 analgesics (weak opioids) at maximal dose, NSAID, colchicine, steroid injection or a combination of these treatments,
  • Patients with pain \> 40/100mm measured by VAS (pain of the last 48 hours),
  • Effective contraception to be used during treatment and until 48h after the last administration for women of reproductive age,
  • Patients who have given written informed consent.

Exclusion

  • Other cause of inflammatory rheumatisms such as Rheumatoid Arthritis, Spondyloarthropathies, psoriatic arthritis, or systemic diseases,
  • Ongoing treatment with Methotrexate, Hydroxychloroquine, biologic or immunosuppressive drugs
  • Malignant pathology, monoclonal gammopathy,
  • Intolerance to anakinra,
  • Contraindications to the use of anakinra: pregnancy or breastfeeding, hypersensitivity to any of the excipients or to proteins from E. coli, severe renal impairment (creatinine clearance \<30 ml / minute), neutropenia (neutrophil count \<1.5 x 109 / l), ongoing infection
  • Patients that cannot follow the protocol,
  • Persons subject to major legal protection (safeguarding justice, guardianship, trusteeship), persons deprived of liberty.

Key Trial Info

Start Date :

February 4 2015

Trial Type :

INTERVENTIONAL

Allocation :

ACTUAL

End Date :

September 4 2018

Estimated Enrollment :

17 Patients enrolled

Trial Details

Trial ID

NCT02263638

Start Date

February 4 2015

End Date

September 4 2018

Last Update

March 12 2019

Active Locations (3)

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Page 1 of 1 (3 locations)

1

CHRU de Lille

Lille, France

2

Groupe Hospitalier Lariboisière

Paris, France

3

Rennes University Hospital

Rennes, France, 35033