Status:

COMPLETED

Survey on Supplement Use in Mitochondrial Disease

Lead Sponsor:

University of South Florida

Collaborating Sponsors:

National Institutes of Health (NIH)

Conditions:

Mitochondrial Disease

Eligibility:

All Genders

Brief Summary

The purpose of this study is to learn about the use of nutritional supplements in patients with mitochondrial disease.

Detailed Description

Our goal is to better assess which nutritional supplements are prescribed to patients with mitochondrial disorders, the monitoring obtained and whether any subjective improvements are noted by the pat...

Eligibility Criteria

Inclusion

  • NAMDC Clinical Registry or RDCRN Contact Registry participant
  • Diagnosis of a mitochondrial disease confirmed by either electron transport chain abnormalities or molecular testing.

Exclusion

  • Lack of participation in NAMDC or RDCRN registries
  • Diagnosis of mitochondrial disorder not confirmed by ETC studies or molecular diagnosis

Key Trial Info

Start Date :

September 1 2014

Trial Type :

OBSERVATIONAL

Allocation :

ACTUAL

End Date :

March 1 2015

Estimated Enrollment :

162 Patients enrolled

Trial Details

Trial ID

NCT02311257

Start Date

September 1 2014

End Date

March 1 2015

Last Update

September 22 2016

Active Locations (1)

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1

University of South Florida

Tampa, Florida, United States, 33612