Status:
RECRUITING
Fibrous Dysplasia, McCune-Albright Syndrome Patient Registry
Lead Sponsor:
Tovah Burstein
Conditions:
Fibrous Dysplasia
McCune Albright Syndrome
Eligibility:
All Genders
Brief Summary
The FD/MAS Patient Registry is an IRB-approved research study that that invites the patients and families to help answer some of the biggest questions about FD/MAS by completing questionnaires about t...
Detailed Description
The FD/MAS Patient Registry is an IRB approved research project that allows patients and families to share their experiences with fibrous dysplasia/McCune-Albright syndrome (FD/MAS) by completing a se...
Eligibility Criteria
Inclusion
- Inclusion Criteria any one or more of the following:
- clinical diagnosis of fibrous dysplasia
- clinical diagnosis of McCune-Albright syndrome
- clinical diagnosis of Mazabraud's syndrome
Exclusion
Key Trial Info
Start Date :
October 31 2016
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
October 1 2028
Estimated Enrollment :
600 Patients enrolled
Trial Details
Trial ID
NCT03231644
Start Date
October 31 2016
End Date
October 1 2028
Last Update
August 12 2025
Active Locations (1)
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1
Tovah Burstein
Bethesda, Maryland, United States, 20816-2558