Status:
COMPLETED
Cardiorespiratory and Muscular Rehabilitation of Children and Young Adults With Marfan Syndrome.
Lead Sponsor:
University Hospital, Toulouse
Conditions:
Marfan Syndrome
Eligibility:
All Genders
7-25 years
Phase:
NA
Brief Summary
Marfan syndrome (MFS) is a rare genetic disease (1/5000) characterized by the association of ocular impairment, cardiovascular disease and musculoskeletal disease. In some chronic conditions, physica...
Detailed Description
Marfan syndrome (MFS) is a rare genetic disease (1/5000) characterized by the association of ocular impairment, cardiovascular disease and musculoskeletal disease. Chronic fatigue and decreased physic...
Eligibility Criteria
Inclusion
- Marfan syndrome according to Ghent criteria.
- For minors, signed informed consent of at least one of the holders of the parental authority. For majors, signed informed consent.
- Patient affiliated to a social security scheme or equivalent.
Exclusion
- \- Cardiac contraindications to Personal Training Program: O Severe aorta dilatation (aortic diameter\> 45 mm) O and / or left ventricular failure (left ventricular ejection fraction \<45%) O and / or severe mitral leakage ≥ grade 3
- \- Pregnancy
Key Trial Info
Start Date :
July 24 2018
Trial Type :
INTERVENTIONAL
Allocation :
ACTUAL
End Date :
June 21 2022
Estimated Enrollment :
28 Patients enrolled
Trial Details
Trial ID
NCT03236571
Start Date
July 24 2018
End Date
June 21 2022
Last Update
July 19 2022
Active Locations (1)
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1
CHU de Toulouse
Toulouse, Midi-Pyrénées, France, 31059