Status:
COMPLETED
Quality of Life and Adjustment Among Siblings of Children and Adolescents With Severe Hemophilia
Lead Sponsor:
Assistance Publique Hopitaux De Marseille
Conditions:
Severe Haemophilia
Eligibility:
All Genders
8-18 years
Brief Summary
Severe hemophilia is a rare and chronic disease characterized by spontaneous bleedings from early childhood, which may lead to various complications especially in joints. The diagnosis of this disease...
Detailed Description
-The assessment of the quality of life would allow assessing both positive and negative impacts, by exploring in a global manner the children and adolescents functioning in various domains (physical a...
Eligibility Criteria
Inclusion
- Sibling (brother, sister, half-brother or half-sister) of older children or adolescents included in the TRANSHEMO study, who lives in the same home)
- Sibling aged 8-18 years old
- Sibling affiliated to the French social security system
- Sibling whose parents are not opposed to the participation in the study
Exclusion
- Sibling (brother, sister, half-brother or half-sister) of older children or adolescents who are not included in the TRANSHEMO study)
- Sibling aged under 8 or over 18 years old
- Sibling not affiliated to the French social security system
- Sibling whose parents are opposed to the participation in the study
- Sibling with difficulties reading and writing
- Sibling with learning disabilities
Key Trial Info
Start Date :
March 15 2020
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
May 1 2021
Estimated Enrollment :
30 Patients enrolled
Trial Details
Trial ID
NCT03299699
Start Date
March 15 2020
End Date
May 1 2021
Last Update
June 8 2023
Active Locations (1)
Enter a location and click search to find clinical trials sorted by distance.
1
Hôpital de la Timone Assistance Publique Hôpitaux de Marseille
Marseille, France, 13354