Status:
COMPLETED
Occupational Integration of Adults With Severe Haemophilia in France: a Study Based on the FranceCoag Cohort
Lead Sponsor:
Assistance Publique Hopitaux De Marseille
Conditions:
Severe Haemophilia
Eligibility:
All Genders
18-65 years
Brief Summary
Severe haemophilia and subsequent arthropathy result in joint pain, disability and impaired health-related quality of life. Improvements in haemophilia care over the last decades might lead to expecta...
Detailed Description
The principal objective of the present project is to assess occupational issues in an exhaustive national cohort of persons with severe haemophilia compared to the national population in order to desc...
Eligibility Criteria
Inclusion
- Patients with severe haemophilia
- Patients aged from 18 to 65 years old
- Patients enrolled in the FranceCoag national cohort
- Patients affiliated to the French social security system
- Non opposition to participate in the study
Exclusion
- Patients with moderate or minor haemophilia
- Patients under the age of 18 or over the age of 65
- Patients with comprehension problems
- Patients unable to read or to write
- Vulnerable patients
- Opposition to participate in the study
Key Trial Info
Start Date :
August 28 2018
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
May 27 2020
Estimated Enrollment :
590 Patients enrolled
Trial Details
Trial ID
NCT03301376
Start Date
August 28 2018
End Date
May 27 2020
Last Update
February 15 2023
Active Locations (1)
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1
Hôpital de la Timone Assistance Publique Hôpitaux de Marseille
Marseille, France, 13354