Status:

COMPLETED

Discovery of Sirolimus Sensitive Biomarkers in Blood

Lead Sponsor:

National Heart, Lung, and Blood Institute (NHLBI)

Conditions:

Lymphangioleiomyomatosis

Eligibility:

FEMALE

18-90 years

Phase:

PHASE2

Brief Summary

Background: Lymphangioleiomyomatosis (LAM) is a rare, progressive disease. It usually affects women in the prime of their lives. It typically results in lung destruction. Studies have shown that a dr...

Detailed Description

Sirolimus (rapamycin), which acts as a targeted inhibitor of the protein mechanistic target of rapamycin (mTOR), has been shown to be effective in patients with lymphangioleiomyomatosis (LAM). It stab...

Eligibility Criteria

Inclusion

  • INCLUSION CRITERIA
  • Female 18 to 90 years of age
  • Diagnosis of LAM
  • Initiation of sirolimus therapy (2mg daily) based on standard-of-care pulmonary indications and the advice of the patient s local physician
  • EXCLUSION CRITERIA
  • Unable to travel to the NIH
  • Unable to provide informed consent
  • Advanced stage of a pulmonary or a systemic illness in which the risk of the study is judged to be significant even in the absence of a clear contraindication to the procedures
  • Women who are pregnant or lactating

Exclusion

    Key Trial Info

    Start Date :

    December 4 2017

    Trial Type :

    INTERVENTIONAL

    Allocation :

    ACTUAL

    End Date :

    March 14 2025

    Estimated Enrollment :

    33 Patients enrolled

    Trial Details

    Trial ID

    NCT03304678

    Start Date

    December 4 2017

    End Date

    March 14 2025

    Last Update

    April 2 2025

    Active Locations (1)

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    Page 1 of 1 (1 locations)

    1

    National Institutes of Health Clinical Center

    Bethesda, Maryland, United States, 20892