Status:

TERMINATED

Kidney Information Network for Disease Research and Education

Lead Sponsor:

Massachusetts General Hospital

Collaborating Sponsors:

Genzyme, a Sanofi Company

Scott and White Hospital & Clinic

Conditions:

ESRD

Fabry Disease

Eligibility:

All Genders

18-65 years

Brief Summary

In this study, Investigators will conduct a prospective cohort study of dialysis patients by collecting research-quality information on patient characteristics, comorbid diseases and laboratory marker...

Detailed Description

KINDRED is a prospective observational cohort study that will enroll up to 5,000 dialysis patients throughout the United States with and without known diagnosis of Fabry disease but at risk for Fabry ...

Eligibility Criteria

Inclusion

  • Adults between 18 and 65 with ESRD undergoing dialysis.

Exclusion

  • Kidney biopsy unlikely to be Fabry disease; those with a diagnosis that is clinically or biochemically proven not to be Fabry disease.

Key Trial Info

Start Date :

January 1 2018

Trial Type :

OBSERVATIONAL

Allocation :

ACTUAL

End Date :

November 21 2019

Estimated Enrollment :

338 Patients enrolled

Trial Details

Trial ID

NCT03321604

Start Date

January 1 2018

End Date

November 21 2019

Last Update

February 24 2021

Active Locations (1)

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Massachusetts General Hospital

Boston, Massachusetts, United States, 02214