Status:
RECRUITING
Sickle-cell Disease Registry of the GPOH
Lead Sponsor:
University Hospital Heidelberg
Collaborating Sponsors:
GPOH Consortium Sickle Cell Disease
Johann Wolfgang Goethe University Hospital
Conditions:
Sickle Cell Disease
Eligibility:
All Genders
Up to 100 years
Brief Summary
Sickle cell disease is one of the most common hereditary diseases. Most severe complications can be avoided if the disease is detected early and treated appropriately. The sickle cell disease registr...
Eligibility Criteria
Inclusion
- signed informed consent
- current residency in either Germany, Austria or Switzerland
- sickle cell disease confirmed by hemoglobin analysis or molecular genetic analysis
- Homozygous sickle cell disease (HbSS)
- HbSC disease
- Sickle cell disease HbS / bThal
- Other, rare sickle cell syndromes such as HbS/OArab, HbS/HPFH, HbS/E, HbS/D Punjab, HbS/C Harlem, HbC/S Antilles, HbS/Quebec-CHORI, HbA/S Oman, HbA/Jamaica Plain
Exclusion
- \- isolated heterozygous trait for HbS
Key Trial Info
Start Date :
December 15 2016
Trial Type :
OBSERVATIONAL
Allocation :
ESTIMATED
End Date :
December 31 2040
Estimated Enrollment :
1000 Patients enrolled
Trial Details
Trial ID
NCT03327428
Start Date
December 15 2016
End Date
December 31 2040
Last Update
January 24 2025
Active Locations (1)
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1
Center for Child and Adolescent Medicine, University Medical Center Heidelberg
Heidelberg, Baden-Wurttemberg, Germany, 69124