Status:
ACTIVE_NOT_RECRUITING
Predictors and Outcomes in Patients With Sickle Cell Disease
Lead Sponsor:
St. Jude Children's Research Hospital
Collaborating Sponsors:
Methodist Comprehensive Sickle Cell Center
University of Memphis
Conditions:
Sickle Cell Disease
Eligibility:
All Genders
16-20 years
Brief Summary
Children with sickle cell disease (SCD) are living longer with the advent of medical advances such as prophylactic penicillin, chronic transfusion, and hydroxyurea. Despite greater longevity in SCD, t...
Detailed Description
Participants will be asked to complete a set of questions during an outpatient clinic visit at St. Jude or Methodist Adult Comprehensive Sickle Cell Center. The questions ask about sickle cell disease...
Eligibility Criteria
Inclusion
- Diagnosis of sickle cell disease (all genotypes).
- Age 16.0 - 20.99 years at initial assessment.
- Primary language is English.
Exclusion
- Participant unable to complete the questionnaires due to refusal, current acute illness (e.g., pain crisis), or significant cognitive impairment as judged by health care providers at the SCD clinic.
- Inability or unwillingness of research participant or legal guardian/representative to give written informed consent.
Key Trial Info
Start Date :
July 31 2018
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
January 1 2026
Estimated Enrollment :
94 Patients enrolled
Trial Details
Trial ID
NCT03431935
Start Date
July 31 2018
End Date
January 1 2026
Last Update
April 9 2025
Active Locations (2)
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1
Methodist Adult Comprehensive Sickle Cell Center
Memphis, Tennessee, United States, 38104
2
St. Jude Children's Research Hospital
Memphis, Tennessee, United States, 38105