Status:
COMPLETED
Outcomes in CF Patients Accessing Their Registry Health Records
Lead Sponsor:
Cystic Fibrosis Registry of Ireland
Conditions:
Cystic Fibrosis
Eligibility:
All Genders
13-30 years
Phase:
NA
Brief Summary
A multifactorial, parallel group, randomised control study in cystic fibrosis (CF) patients aged 13-30 years over an 18 month period. Patients will be offered read-only access to their CF registry ele...
Eligibility Criteria
Inclusion
- diagnosed with CF
- registered with their national CF patient registry
- FEV1pp ≥40
- aged 13-30 years
Exclusion
- organ transplantation
- FEV1pp \<40
Key Trial Info
Start Date :
March 1 2016
Trial Type :
INTERVENTIONAL
Allocation :
ACTUAL
End Date :
September 1 2017
Estimated Enrollment :
282 Patients enrolled
Trial Details
Trial ID
NCT03434886
Start Date
March 1 2016
End Date
September 1 2017
Last Update
February 15 2018
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