Status:
WITHDRAWN
Identity Development in Youth With Neuromuscular Diseases
Lead Sponsor:
Universitaire Ziekenhuizen KU Leuven
Conditions:
Neuromuscular Diseases
Eligibility:
All Genders
12-25 years
Brief Summary
Up to 20% of the adolescents worldwide are diagnosed with a chronic illness. Although it's known that these young people suffer from a wide range of physical discomfort, in real life they have to cope...
Detailed Description
A large-scale, multi-informant, two-wave longitudinal study is proposed to investigate our three different research objectives, using complementary methods and multiple sources for data collection. Su...
Eligibility Criteria
Inclusion
- Inclusion Criteria:
- confirmed diagnoses of a neuromuscular disorder;
- aged 12-25 years at baseline;
- last neuromuscular consult at our NMRC is 5 or less years ago;
- able to read and write Dutch;
- valid contact details available in the clinical database or the hospital information system.
- Exclusion criteria:
- Patients that do not fulfill the inclusion criteria
Exclusion
Key Trial Info
Start Date :
January 1 2019
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
February 1 2020
Estimated Enrollment :
Patients enrolled
Trial Details
Trial ID
NCT03775135
Start Date
January 1 2019
End Date
February 1 2020
Last Update
December 13 2018
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