Status:
COMPLETED
The Impact of Charcot-Marie-Tooth Disease in the Real World
Lead Sponsor:
Vitaccess Ltd
Collaborating Sponsors:
ACMT-Rete per la malattia di Charcot-Marie-Tooth OdV
Charcot-Marie-Tooth Association
Conditions:
Charcot-Marie-Tooth Disease
Eligibility:
All Genders
18+ years
Brief Summary
An observational, non-interventional registry study to collect real-world data from people living with Charcot-Marie-Tooth disease (CMT) and its treatment, which will be available to researchers to fu...
Detailed Description
The registry uses Vitaccess' digital real-world evidence platform and has been developed in collaboration with CMT experts, Patient Advocacy Organizations (PAOs) and the biopharmaceutical company Phar...
Eligibility Criteria
Inclusion
- (\*) Aged 18 years and over (\*) Diagnosed with any stage and any subtype of Charcot-Marie-Tooth disease (\*) Resident in France, Germany, Italy, Spain, the UK, or the USA (\*) Have a National Health Service (NHS) or Community Health Index (CHI) number, or equivalent (\*) Willing to use their own smartphone
Exclusion
- (\*) No specific exclusion criteria.
Key Trial Info
Start Date :
October 9 2018
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
December 31 2023
Estimated Enrollment :
3321 Patients enrolled
Trial Details
Trial ID
NCT03782883
Start Date
October 9 2018
End Date
December 31 2023
Last Update
November 14 2024
Active Locations (1)
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1
Vitaccess Ltd
London, United Kingdom, TW9 2JA