Status:
COMPLETED
Palliative Care Coaching for Families With Rare Advanced Lung Diseases
Lead Sponsor:
West Virginia University
Conditions:
Lung Diseases
Rare Non-Neoplastic Disorder
Eligibility:
All Genders
18+ years
Phase:
NA
Brief Summary
With one of the highest incidences of lung disease deaths in the nation, there is great need for home end-of-life palliative care in the rural, disadvantaged communities of West Virginia. The aims of ...
Detailed Description
Nearly 15 million Americans and greater than 10% of West Virginia (WV) residents live with and eventually die from Rare and Advanced Lung Diseases (R-ALD), including pneumoconiosis (i.e., dust, asbest...
Eligibility Criteria
Inclusion
- Adult patients diagnosed with R-ALD, and their primary family caregivers dyad.
- All participants must be alert and oriented.
- Be able to read and write in English.
Exclusion
- Patients who have received or are on a waiting list for a lung transplant
- Patients diagnosed with another terminal illness.
Key Trial Info
Start Date :
November 1 2018
Trial Type :
INTERVENTIONAL
Allocation :
ACTUAL
End Date :
September 30 2019
Estimated Enrollment :
35 Patients enrolled
Trial Details
Trial ID
NCT03813667
Start Date
November 1 2018
End Date
September 30 2019
Last Update
October 21 2019
Active Locations (1)
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1
West Virginia University Hospital
Morgantown, West Virginia, United States, 26506