Status:
COMPLETED
The Patient's Journey - the Time to Final Diagnosis in Patients With SiNET
Lead Sponsor:
Vastra Gotaland Region
Collaborating Sponsors:
Novartis
Conditions:
Neuroendocrine Tumors
Eligibility:
All Genders
18+ years
Brief Summary
"The patient's journey" is an interview based study assessing the patients' experience from the first symptoms to a final diagnosis focusing on patients with small intestinal neuroendocrine tumors.
Detailed Description
The project focus on patients with small intestinal neuroendocrine tumors (SiNET's) with an incidence of 1-2/100 000 yearly. The primary tumor(s) are often small and symptoms usually arise when the di...
Eligibility Criteria
Inclusion
- Patients living in Western Sweden
- \> 18 years of age
- Performance status 0-3
- Expected remaining survival of \> 6 months
- Diagnosed with a small intestinal neuroendocrine tumor during 2016-2018
Exclusion
- Not able to read and/or understand Swedish language
- Dementia/memory loss
- Performance status \>3
Key Trial Info
Start Date :
February 1 2019
Trial Type :
OBSERVATIONAL
Allocation :
ACTUAL
End Date :
December 31 2019
Estimated Enrollment :
20 Patients enrolled
Trial Details
Trial ID
NCT03840720
Start Date
February 1 2019
End Date
December 31 2019
Last Update
April 28 2020
Active Locations (1)
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1
Dept of Oncology
Gothenburg, Sweden