Status:
COMPLETED
'Uptime' Participation Intervention in Girls and Women With Rett Syndrome
Lead Sponsor:
Rigshospitalet, Denmark
Conditions:
Rett Syndrome
Eligibility:
FEMALE
5+ years
Phase:
NA
Brief Summary
The aim of the study is to evaluate the feasibility and health-related effects of an individualized 12wk 'uptime' participation intervention in girls and women with Rett syndrome. Girls and women abov...
Eligibility Criteria
Inclusion
- Girls and women above 5 years of age with Rett syndrome and a confirmed MECP2 mutation
- Hoffer ambulation scale levels I-IV
Exclusion
- Girls and women who have undergone orthopedic surgery in the lower extremities within the last 6 months
- Girls and women who have undergone spinal fusion within the last 12 months
Key Trial Info
Start Date :
February 7 2017
Trial Type :
INTERVENTIONAL
Allocation :
ACTUAL
End Date :
December 15 2017
Estimated Enrollment :
14 Patients enrolled
Trial Details
Trial ID
NCT03848442
Start Date
February 7 2017
End Date
December 15 2017
Last Update
February 21 2019
Active Locations (1)
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1
Center for Rett syndrome, Department of Paediatrics and Adolescents Medicine
Copenhagen, København Ø, Denmark, 2100