Status:

COMPLETED

Validity of Somatosensori Remediation for Postural Control in the Treatment of Ehlers-Danlos Syndrome Hypermobility Type (hEDS)

Lead Sponsor:

University Hospital, Caen

Conditions:

Ehlers-Danlos Syndrome Hypermobility Type (hEDS)

Eligibility:

All Genders

18-40 years

Phase:

NA

Brief Summary

In the absence of a medical consensus, the current management of Ehlers-Danlos Syndrome hypermobility type (hEDS) remains very speculative That's why investigators want in this study to demonstrate th...

Eligibility Criteria

Inclusion

  • For EDS patients :
  • Subjects aged 18 to 40,
  • SEDh patients newly diagnosed for less than 2 years according to international criteria of 2017,
  • Having a Body Mass Index (BMI) of less than 30,
  • Affiliated to a social security scheme,
  • Having read the information document and given in writing their free and informed consent to participate in the study.
  • For healthy volunteers :
  • Subjects aged 18 to 40,
  • Having a Body Mass Index (BMI) of less than 30,
  • Having a Beigthon score \<5 (no joint hypermobility),
  • Having normal muscle strength,
  • Affiliated to a social security scheme,
  • Having read the information document and given in writing their free and informed consent to participate in the study.

Exclusion

  • For EDS patients :
  • Subjects under 18,
  • Proprioceptive physiotherapy (Huber 360 platform type, LPG) in progress or already performed,
  • previous treatment of hEDS capable of limiting the effects of rehabilitation (e.g. orthodontics, orthoptics),
  • Diagnosis of other connective tissue abnormalities,
  • Earlier prescription of compression garments,
  • Pregnant or lactating women,
  • Lack of effective contraception during the study period for women
  • Person under tutorship or curatorship, or deprived of liberty by judicial or administrative decision,
  • Mental or physical impossibility to agree to participate in the study,
  • Known allergy to one of the components of compression garments,
  • Disabling motor impairment, or limiting the performance of motor and psychomotor tests.
  • Simultaneous participation in another clinical study.
  • For healthy volunteers :
  • Subjects under 18,
  • History of vascular, neurological, musculoskeletal or vestibular disorders,
  • Having orthoptic, orthopedic or orthodontic disorders,
  • Previous history or progressive disease of vascular, ophthalmological, neurological, musculoskeletal condition, or vestibular condition
  • Pregnant or lactating women,
  • Person under tutorship or curatorship, or deprived of liberty by judicial or administrative decision,
  • Mental or physical impossibility to agree to participate in the study,
  • Simultaneous participation in another clinical study.

Key Trial Info

Start Date :

May 29 2018

Trial Type :

INTERVENTIONAL

Allocation :

ACTUAL

End Date :

November 25 2022

Estimated Enrollment :

40 Patients enrolled

Trial Details

Trial ID

NCT04020107

Start Date

May 29 2018

End Date

November 25 2022

Last Update

February 13 2023

Active Locations (1)

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Page 1 of 1 (1 locations)

1

Caen Univerity Hospital

Caen, France

Validity of Somatosensori Remediation for Postural Control in the Treatment of Ehlers-Danlos Syndrome Hypermobility Type (hEDS) | DecenTrialz