Status:
COMPLETED
The Transitioning Rural Adolescents to Adult Care Study
Lead Sponsor:
University of Alberta
Conditions:
Transition
Congenital Heart Defect
Eligibility:
All Genders
16-25 years
Phase:
NA
Brief Summary
Approximately 1 in 10 teenagers lives with a chronic health condition that will require ongoing care as they enter adulthood. Birth defects of the heart, also known as congenital heart disease (CHD) a...
Detailed Description
PURPOSE: The Transitioning Rural Adolescents to Adult Care (TRAAC) Study is a prospective cohort study evaluating the impact of a Telehealth-based nurse-led transition intervention in combination wit...
Eligibility Criteria
Inclusion
- 16-25 year olds with moderate or complex congenital heart disease (CHD), as previously defined
- Followed in a cardiology satellite/outreach clinic affiliated with the Stollery Children's Hospital (High Level, Fort McMurray, Grand Prairie, Red Deer, Yellowknife)
Exclusion
- less than a Grade 6 level of reading and comprehension, based on medical record review or parent report;
- heart transplantation, as this results in distinct health challenges.
Key Trial Info
Start Date :
September 1 2019
Trial Type :
INTERVENTIONAL
Allocation :
ACTUAL
End Date :
December 31 2023
Estimated Enrollment :
37 Patients enrolled
Trial Details
Trial ID
NCT04090827
Start Date
September 1 2019
End Date
December 31 2023
Last Update
May 21 2024
Active Locations (1)
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1
Stollery Children's Hospital
Edmonton, Alberta, Canada, T6G 2B7