Status:
COMPLETED
Caregiver Speaks: A Technologically Mediated Storytelling Intervention
Lead Sponsor:
Washington University School of Medicine
Collaborating Sponsors:
University of Pennsylvania
Conditions:
Alzheimer Disease
Eligibility:
All Genders
18+ years
Phase:
NA
Brief Summary
Caregiver speaks is a randomized trial of a Photo elicitation intervention for caregivers of Alzheimers patients.
Detailed Description
This randomized controlled trial will test an intervention for an understudied population - family caregivers of persons living with dementia (PLWD). This project is the first of its kind to longitudi...
Eligibility Criteria
Inclusion
- be a designated family caregiver (i.e., a family member or friend providing unpaid care) of a PLWD who is enrolled in hospice care,
- be at least 18 years old,
- be involved in decisions related to their loved one's hospice care,
- have access to a digital camera or other photo-taking device such as a cell phone
- be willing to photograph images they feel capture their caregiving and bereavement experiences
- be willing to set up a Facebook account and join the private Facebook group, 7) have access to e-mail for REDCap survey data collection
Exclusion
- none
Key Trial Info
Start Date :
March 1 2020
Trial Type :
INTERVENTIONAL
Allocation :
ACTUAL
End Date :
August 31 2023
Estimated Enrollment :
457 Patients enrolled
Trial Details
Trial ID
NCT04103580
Start Date
March 1 2020
End Date
August 31 2023
Last Update
February 26 2025
Active Locations (1)
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1
University of Missouri
Columbia, Missouri, United States, 65202